HUGE good news! While there is still a lot going on and everything, I just wanted to share with you all that Jonas has been seizure free for 1 month!!! 30 WHOLE DAYS without seizures! We are still tweaking meds and coming off some (and hopefully more...), but we have been so thrilled and THANKFUL for these recent seizure free days!
Also, Jonas is no longer on the keto diet. We think it may have been helping slightly, but we discontinued after 4 months. The pros (that were minimal at best) did not outweigh the terrible cons of the diet. Doing the keto diet with Jonas was one of the hardest things I have ever done in my life, so major kudos to those that do it long term. I would have loved for it to have worked and happily stuck with it, but it wasn't giving us the benefits we'd so hoped for.
But, again, the wonderful, fantastic, amazing news is that his newest medication (#7 I believe) is helping! We just pray none of the scary side effects come upon Jonas!
Keep the prayers and good vibes coming, it's working!!! Thank you!